One year ago today was the terrible day when my niece and Goddaughter Faith passed away. It's hard to believe that she's been gone for almost half the time that we've had her with us. I was trying to figure out what to write in this post, but it seems like over the past year, anything you could think of saying has already been said.
The one thing that I think would be a good message is for families of other heart warriors. Every case is different, so just because Faith's case turned out to be too tricky doesn't mean that there aren't many children who have gotten through this and have survived into adulthood. I hope that some day HLHS will be like other heart defects that can be corrected shortly after birth with no worries throughout the rest of life. There are really excellent doctors and surgeons working on making this happen every day.
Also, just because Faith's passing was a crushing defeat for my family, it doesn't diminish the fact that her presence was a shining light that I would like to think has brought us a little bit closer together.
Song that I played for Faith at the company Christmas party (The Dance):
1 Year...
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